There’s a teenager in the ICU in BC with bird flu.

As news spreads- I’m seeing increasing number of people ask:

“what health conditions did he have? Was he overweight?”

Can we PLEASE not do this again? A 16 year old is fighting for his life. Stop looking for fault and blame.

Just like with Covid - people are trying to tell themselves there must be “something wrong” with that individual to make them more vulnerable.

They must be in the “other” category. They’re “expendable.”

It needs to stop.

First off - no one is expendable. We’ve been dealing with this horrible “othering” for five years. Disabled and chronically ill people are exhausted.

Second - bird flu is no joke. It can be quite serious.

Instead of looking for fault with the victim so YOU can feel better about your own personal risk - we should be taking steps right now to minimize spread.

We should be demanding transparency from the government on the severity of the threat.

We should have mandatory masking in healthcare. We should be cleaning the air and educating the public on the benefits of respirators and how to use them properly.

We should agree to stop asking ableist questions. Stop blaming the victim. Health is a temporary state. Death and disability can and do befall everyone.

When the first question someone asks when they hear of a person dying or being disabled is “what comorbids did they have?” all they’re doing is trying to cling on to the comfortable lie.

They’re trying to make sure they can keep telling themselves everything is fine, they’re the exception, the threat doesn’t apply to them.

As long as we continue to take that selfish and faulty approach - viruses keep winning.

Everyone can’t be the exception. Once people realize that and start protecting their health and the health of others - we will ALL be much better off.

cbc.ca/news/canada/british-col…

#avianflu #birdfu #H5N1 #keepmasksinhealthcare #maskup #respirators #airborne #n95 #covidisairborne #eugenics #ableism #discrimination #disabilityrights

When I was first diagnosed with MCAS I thought “a condition I can control!”

I genuinely believed that since there were clear & obvious triggers - I could put in the work, overhaul my life and be free of attacks.

When a patient plans - mast cells laugh.

I threw myself into research trying to learn how to adopt a low histamine diet, clean my air and change my body care and cleaning products.

I (falsely) assumed that if I made enough changes - sacrificed HARD enough - I wouldn’t have to deal with flare ups.

It was exhausting. Many of the changes DID help. A low histamine diet, cleaner air, a proper med and supplement schedule and non toxic cleaning products all helped to reduce my overall “bucket” so that my symptoms were less severe.

The problem was - I continued having attacks. From minor attacks to full blown anaphylaxis - no matter how much work I put in the attacks didn’t stop.

It was incredibly frustrating - and I began tracking everything I ate, used or did in an effort to find patterns.

In the end I realized that sometimes - there are no answers. “Putting in the work” doesn’t guarantee you won’t have attacks.

It’s a help - and we should do whatever we can to minimize our symptoms - but chronic illness (and especially MCAS) doesn’t care about your plans.

I had to learn to let go. Constantly blaming myself, over analyzing every situation and trying to nail down exact triggers was exhausting me.

It wasn’t helping my physical health and was destroying my mental health

At a certain point - we have to accept that chronic illness can be wildly unpredictable - and flares are NOT our fault.

Setbacks happen - and the best thing you can do is give yourself grace and remember that the pain WILL pass.

This applies to Covid as well. I see far too many people who are covid cautious being blamed for their infections. Being grilled as to what their exact precautions were as people try and exploit a perceived weakness somewhere.

This isn’t helping.

If you’re masking and doing everything you can do to avoid covid - you’re doing a great job. If you got infected anyways - that’s the fault of our institutions and governments who’ve allowed the virus to run rampant and encouraged people NOT to take precautions

Just like we have to let go of trying to find every possible trigger for our chronic illness - we have to let go of the blame when people get infected with Covid.

Blame, shame and guilt aren’t helping anyone - and they aren’t good for your health.

To be clear - “letting go” doesn’t have to mean giving up. It doesn’t mean you stop trying to improve your health or stop mitigating for COVID.

It simply means you stop fighting the reality that you’re sick. You lean IN to the conditions and try and find ways to accommodate

It’s a difficult thing to do. I’m still having to work at it every single day. But it’s worth making the effort.

Society, HCWs and even friends & family can be cruel to those with chronic illness - we don’t need to be cruel to ourselves.

Which brings me to my third and final article in my series on living with MCAS - Learning to Let Go.

This post explains how I learned to be kinder & gentler with myself and accept that setbacks WILL happen and they’re not my fault:

disabledginger.com/p/learning-…

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#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans #MastCellActivationSyndrome #mastcells #histamine #lowhistaminediet #mastocytosis #anaphylaxis